Narcolepsy UK has agreed to assist in the completion of an international research project on the burden of narcolepsy and idiopathic hypersomnia sponsored by the pharmaceutical company Takeda (USA). The goal of this research is to better understand the impact of narcolepsy and idiopathic hypersomnia on quality of life, health care, and personal costs. Six […]
Charitable Trusts are an important source of funds for organisation like Narcolepsy UK. Some Trusts will also consider making donations to individuals. If you are interested in applying for a donation from a Trust, please download our guide to doing so, and our list of those Trusts that we believe to be open to applications from […]
The following items can be useful to supply with any benefit applications relating to narcolepsy. It will be helpful to you if you can gather as many of them as possible to include with your application. All people with narcolepsy Children only When you have assembled your supporting info pack remember to post it by recorded […]
Many people with narcolepsy are prescribed multiple medications, and – unless you are entitled to free prescriptions – the cost can be substantial. It may be cheaper to buy a prescription prepayment certificate (PPC) – effectively a prescription “season ticket”. A PPC covers all of your NHS prescriptions, including NHS dental prescriptions, no matter how many items […]
One of the most important functions of our Helpline is to provide assistance with claims for benefits. However, in order for them to get the most from the Helpline, we do need clients making claims for benefits to ensure that they are ready to make their application. Please therefore follow this procedure: NOW YOU ARE […]
A new narcolepsy epidemic In 2010 there was a startling increase in narcolepsy across the UK and northern Europe. With new cases developing on a weekly basis, some doctors described it as an epidemic. Pandemrix to prevent swine flu During the Swine Flu epidemic of 2009/10 the vaccine Pandemrix was given to six million people […]
This research programme is investigating school performance and well-being in children with narcolepsy aged 8-16 years old. The project has been set up by The University of Leeds and has received ethical approval from the School of Psychology’s Research Ethics Committee (ref: 15-0198, date: 03.08.15). The research is taking place in the United Kingdom and […]
“We won the appeal, am so relieved! Your support means so much, thank you” Having narcolepsy can have a significant impact on your quality of life, and may affect your financial situation. Your ability to earn an income may go down because of the effects of your health problems, so it is important to find […]
You may still be able to drive Many people with narcolepsy are able to drive. However, narcolepsy is a condition that may affect your ability to drive safely, and you will be permitted to drive only if DVLA (Driver and Vehicle Licensing Agency – the organisation that licenses cars and drivers for driving on public […]
