Resources

Our aim is to make this the “go to” place for narcolepsy information. Use the filters to find everything you need.

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UK Sleep Centres

Centres around the UK with specialist experience of sleep disorders, including narcolepsy.

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Travelling with medication

Travelling with medication can present practical problems, particularly as some narcolepsy medications are controlled drugs.

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Help with NHS travel costs

If you are referred to hospital or other NHS premises for NHS specialist treatment or diagnostic tests by your doctor, dentist or other health professional, you may be able to claim a refund of reasonable travel costs.

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Free prescriptions and help with health costs

For many people with narcolepsy, the costs of prescriptions may be considerable.

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Pregnancy and narcolepsy

If you have narcolepsy and are pregnant, you will need to ensure that the healthcare professionals you come into contact with are as well informed as possible about your condition and your medication.

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Sodium oxybate (Xyrem) – Ex gratia provision to victims of Pandemrix

Scheme for ex gratia funding of Xyrem to people who have made personal injury claims after developing narcolepy caused by Pandemrix vaccine

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What is a “generic” medicine?

When a new medicine is first developed and approved for use, it is usually only available from one manufacturer. Normally, that is the company that invented it and that obtained the first authorisation for its use, after steering the drug through the complex and expensive process of clinical trials.

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