Resources

Our aim is to make this the “go to” place for narcolepsy information. Use the filters to find everything you need.

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Managing narcolepsy

A few simple tips that can help ensure maximum health and well-being. Many of these are applicable to everyone, but people with narcolepsy may find them particularly beneficial.

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Narcolepsy and holidays

If you suffer from narcolepsy, going on holiday may present difficulties that simply do not occur for other people.

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The emotional impact of narcolepsy

The emotional impact of narcolepsy: frustration, anger and irritation can be difficult to deal with.

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Pregnancy and narcolepsy

If you have narcolepsy and are pregnant, you will need to ensure that the healthcare professionals you come into contact with are as well informed as possible about your condition and your medication.

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Help for families

Having narcolepsy impacts on every aspect of a child's life, and the lives of parents and other close family members.

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Narcolepsy Charter

Aimed at tackling the challenges and discrimination faced by the narcolepsy community across the UK, the Narcolepsy Charter will be a written statement of the rights of people with narcolepsy and their carers. It will set out the basic rights that people with narcolepsy and their carers deserve and should expect.

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Infographics

Narcolepsy UK have produced and/or distributed several helpful infographics in recent years. These can be used to share across social media, or other methods.

Here you can see small versions of each, with links to download the full size files at the bottom of the page.

You may also be interested in our Posters.

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#NarcolepsyStories

In the run-up to World Narcolepsy Day 2020, Narcolepsy UK invited people with narcolepsy and their families to contribute their stories of what it's like to live with narcolepsy or with a person with narcolepsy.

Thank you to all those brave enough to share your experiences. Some of the stories make for hard reading and some are uplifting, but we hope that together they capture the spectrum nature of this disorder.