A few simple tips that can help ensure maximum health and well-being. Many of these are applicable to everyone, but people with narcolepsy may find them particularly beneficial.
If you have narcolepsy and are pregnant, you will need to ensure that the healthcare professionals you come into contact with are as well informed as possible about your condition and your medication.
Aimed at tackling the challenges and discrimination faced by the narcolepsy community across the UK, the Narcolepsy Charter is a written statement of the rights of people with narcolepsy and their carers. It sets out the basic rights that people with narcolepsy and their carers deserve and should expect.
Narcolepsy UK have produced and/or distributed several helpful infographics in recent years. These can be used to share across social media, or other methods.
Here you can see small versions of each, with links to download the full size files at the bottom of the page.
In the run-up to World Narcolepsy Day 2020, Narcolepsy UK invited people with narcolepsy and their families to contribute their stories of what it's like to live with narcolepsy or with a person with narcolepsy.
Thank you to all those brave enough to share your experiences. Some of the stories make for hard reading and some are uplifting, but we hope that together they capture the spectrum nature of this disorder.
