Resources

Our aim is to make this the “go to” place for narcolepsy information. Use the filters to find everything you need.

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Cataplexy

Sudden muscular weakness triggered by strong emotions - weakening of the facial muscles, weakness at the knees, or total collapse on the floor.

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Excessive Daytime Sleepiness

An irresistible urge to sleep at inappropriate times during the day.

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Guide to Benefits

Having narcolepsy can have a significant impact on your quality of life, and may affect your financial situation. Your ability to earn an income may go down because of the effects of your health problems, so it is important to find out if there are any benefits you can claim. Even if you are still working there may be other benefits you are entitled to.

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How is narcolepsy diagnosed?

In the past, it was common for people with symptoms of narcolepsy to go undiagnosed, sometimes for many years. With greater recognition of the condition, and greater awareness amongst the medical profession, the situation is improving, but misdiagnosis of narcolepsy, and thus inappropriate treatment, is still relatively common.

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How is narcolepsy treated?

Treatment is focused on controlling the symptoms of narcolepsy in a way that allows the patient to live as normal a life as possible.

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Managing narcolepsy

A few simple tips that can help ensure maximum health and well-being. Many of these are applicable to everyone, but people with narcolepsy may find them particularly beneficial.

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Narcolepsy and driving

Many people with narcolepsy are able to drive. However, narcolepsy is a condition that may affect your ability to drive safely, and you will be permitted to drive only if DVLA is satisfied that your condition is controlled well enough that allowing you to drive will not cause an unacceptable risk to you and to other people.

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Narcolepsy and education

Although narcolepsy can have a major indirect impact on concentration, attention span and short term memory, it does not affect cognition or intelligence directly. However, without measures being taken to mitigate its effects, a diagnosis of narcolepsy may have a significant impact on a student's ability to learn.

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Narcolepsy and work

Although narcolepsy can have a major indirect impact on concentration, attention span and short term memory, it does not affect cognition or intelligence directly. Provided that appropriate allowances are made for their sleep disorder, many people with narcolepsy are able to work, though there are obviously certain occupations that are not open to them.

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Pandemrix narcolepsy

In 2010 there was a startling increase in narcolepsy across the UK and northern Europe. With new cases developing on a weekly basis, some doctors described it as an epidemic.

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